Privacy Policy

HAND Privacy Policy
Your privacy on the Internet is important to us. Since this site collects certain types of personal information from users, we feel you should fully understand the terms and conditions surrounding how that information is used. At various points on our website, we describe the types of personal information we collect at that point and how we handle such information. This privacy statement summarizes these descriptions of what information we collect online and how we use it.

Personal Information
We ask users to provide us with personal information about themselves. We use this information to personalize user sessions after the first site visit, and to contact individuals who wish to share their personal experiences with battling or overcoming a physical or mental illness. We may in the future use this information to enable users to communicate with their legislators. We will not reveal, rent, or otherwise make available any personal information or email addresses to third parties outside of the Health Access Network without each user's express permission.

Cookies
A cookie is a small data file that certain websites write to your hard drive when you visit them. A cookie file can contain information, such as a user ID, that the site uses to match with the registration information you've already given to us. But the only personal information a cookie can contain is information you supply yourself. A cookie can't read data off your hard disk or read cookie files created by other sites. This site uses cookies to authenticate the user and keep track of the user session.

Use of Registration Information
This website uses any information voluntarily given by users to enable HAND to contact these users about their experiences with advanced medical treatment for physical or mental illness. HAND keeps all users' contact information and personal experiences confidential, and will not share a user's personal information without the express permission of that user.

Non-identifiable website visitor data may be collected and used in aggregate to help shape and direct the creation and maintenance of content.

Email
It is your right to stop receiving email any time you choose and to only receive relevant and wanted email. We only collect and hold your email address in order to enable you to send communications to your legislators. You can unsubscribe from our email list at any time and for any reason. An unsubscribe link is included in every email, along with instructions.

SPAM and Policy Abuse
In spite of our precautions, there remains the possibility that a person will sign up someone else without their permission. If you think this has happened to you, please send an email with details to info@handforhealth.org.

We protect your personal information from inappropriate use or disclosure, in accordance with HIPAA regulations. Our employees and those of companies that help us advocate for access to quality health care, are required to comply with our requirements that protect the confidentiality of your personal health information. Only a select few employees will have access to your personal health information, and they may look at it only when there is an appropriate reason to do so.

We will not disclose your personal information to any other company for their use in marketing their products or services to you. However, as described below, we may use and disclose personal health information about you as required by law. The following describe these and other uses and disclosures, together with some examples.

• To Avert a Serious Threat to Health or Safety: We may disclose personal information to avert a serious threat to someone’s health or safety. We may also disclose personal information to federal, state or local agencies engaged in disaster relief as well as to private disaster relief or disaster assistance agencies to allow such entities to carry out their responsibilities in specific disaster situations.
• Where Required by Law or for Public Health Activities: We disclose personal information when required by federal, state or local law. Examples of such mandatory disclosures include notifying state or local health authorities regarding particular communicable diseases, or providing personal information to a governmental agency or regulator with health care oversight responsibilities. We may also release personal information to a coroner or medical examiner to assist in identifying a deceased individual or to determine the cause of death.
• For Law Enforcement or Specific Government Functions: We may disclose personal information in response to a request by a law enforcement official made through a court order, subpoena, warrant, summons or similar process. We may disclose personal information about you to federal officials for intelligence, counterintelligence, and other national security activities authorized by law.
• When Requested as Part of a Regulatory or Legal Proceeding: If you or your estate are involved in a lawsuit or a dispute, we may disclose personal information about you in response to a court or administrative order. We may also disclose personal information about you in response to a subpoena, discovery request, or other lawful process by someone else involved in the dispute, but only if efforts have been made to tell you about the request or to obtain an order protecting the personal information requested. We may disclose personal information to any governmental agency or regulator with whom you have filed a complaint or as part of a regulatory agency examination.
• Other Uses of Personal Information: Other uses and disclosures of personal information not covered by this notice and permitted by the laws that apply to us will be made only with your written authorization or that of your legal representative. If we are authorized to use or disclose personal information about you, you or your legally authorized representative may revoke that authorization, in writing, at any time, except to the extent that we have taken action relying on the authorization. You should understand that we will not be able to take back any disclosures we have already made with authorization.